Earlier this week, Gracie Prang was shocked to hear the crunch of snow clearly for the first time in her life.
âThe simple things that the rest of us take for granted are really popping up and weâre seeing it. Itâs really exciting,â her mother Stephanie Schneck told CTVâs Your Morning Monday.
Without hearing aids, the 10-year-oldâs hearing can drastically fluctuate from near hearing loss to being perfectly fine. This is because of fluid which can fill up her inner ear, making sounds seem like sheâs underwater.
âYou can be a foot in front of her face screaming at her and she couldnât hear you,â Schneck told CTVNews.ca in a phone interview Monday.
She feels fortunate to have received a donation from Kinsmen Telemiracle Foundation to cover the specific $6,400 pair of hearing aids for Gracie, because her family couldnât afford them. But she says it should have been covered by the Saskatchewan government and that other families arenât going to be as lucky.
For months, Schneck has been calling for changes to the provinceâs , which were changed in 2017 with a stronger focus on parents and adults going through registered private sector clinics.
Last week, she directly, but Health Minister Jim Reiter told CTV Regina at the time: âWeâre going to get her some answers as soon as we possibly can.â
Schneck said â(the province) buys certain hearing aids in bulk and they give you the option to purchase them at a discount but thereâs no actually funding program.â For families like hers, she said, âthereâs really a whole lot of nothing.â
According to Schneck, three audiologists told her that the only options for her daughter were permanent surgical implants, which wouldn't work because Gracieâs bones are still developing; a more expensive headband or the hearing aids Gracie has now; or the Adhear implants, a non-surgical bone conduction hearing system which connects to a hearing aid in her ear canal.
Schneck said the last option was the best for her daughter whoâs extremely active and loves driving 4-wheel quads, fishing and hunting. Because going through the , her mother took her to private audiologists who canât provide financing help.
âYou pay up front or you donât get your hearing,â she said.
She doesnât want other families to fall through the cracks and wants the government to step up.
Health Minister Jim Reiter emailed a statement to CTVNews.ca saying his office reached out to Schneck to try and figure out how her daughterâs hearing aidsâ ânew technology might fit within our provincial programs.â
The statement also adds that the devices are âso new that the Canadian Agency for Drugs and Technologies in Health does not have any additional information on it. Weâve asked them to investigate further, and hope to hear back in the coming weeks.â
Gracieâs pediatric audiologist, Dr. Karen Sharpe, who had worked for the province up until Saskatchewanâs cuts in 2017, said that for families like Schneckâs, the options are very limited.
âItâs just part of the cuts of 2017 and I donât know if thereâs other options,â she said, adding that she believes the government wasnât aware of the situation before or realized how the cuts were affecting people.
âThe government does provide hearing aids (cochlear and surgical processors) but theyâre traditional hearing aids and in Saskatchewan I know the waitlist can be long,â Sharpe said, adding that,even then, people sometimes raise the money to pay for them through websites like GoFundMe.
Sharpe added that it could be feasible to provide the type of aids Gracie needs through the government.
As someone whoâs been bothin the public and private sectors, Sharpe said the province could possibly run these aids through the supplementary health program which is traditionally only used for low-income families.
Schneck says her daughter was fortunate in that the Kinsmen Telemiracle Foundation, which helps people get special needs equipment and medical treatment, stepped up to pay for the hearing aids.
âAccording to the school, she has done a complete 360. She can pay attention, she can be a part of group conversations, she can be a part of regular socialization in class,â she told CTVâsYour Morning.
In September, she started a for the aids but after the foundation agreed to pay for them, Schneck says any excess money is going towards helping other children in similar situations.
âMoney donated here from this point on, is going to be put towards starting a non-profit charity for (kids) in need of hearing aids,â the description on the fundraising page reads.